ENS@T - Registry News and Updates March 2015
This page shows new studies, updates to data points and functions, and bugs resolved in the past six months.
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Previous updates
Data points
Predict Ancillary FIRM-ACT Study (ACC - FRPA3)
- Diagnostic Procedures
- Date of FIRM-ACT enrolment
- Comorbidities (x5)
- Performance status (ECOG)
- Date of metastatic diagnosis
Study Protocols
- HairCo
- MAPP-Prono
- Long-term PHPGL
- MIBG Impact
- Predict Ancillary FIRM-ACT
Functions
- Generalised study email notifications: any patient registered as being a candidate for a study will automatically trigger a notification email to be sent to the study PI
- Access is now restricted to membership of the ENSAT network in good standing of at least Auxiliary level. Account deactivation is also available for any PIs that require this.
- Deceased ACC patients are flagged in the home ACC listing where appropriate
Bugs
- A variety of ordering and labelling issues in the pheo non-surgical interventions and imaging forms have now been fixed
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For any technical queries about the registry please contact
Anthony Stell.
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